Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Are you able to be out of bed most of the day? NHLBI Health assessment
e.g., Activities of Daily Living (ADL), Instrumental ADL, cognitive function, etc.
NIH CDEs
  • NHLBI
    • Sickle Cell Disease
      • Domain
        • NIH Resources
          • NIH Resources
        • Outcomes and End Points
          • Physical Function
      • Classification
        • Proposed

# Datatype
Value List

# Permissible value Value meaning name
Unable to Do Unable to Do
With a Little Difficulty With a Little Difficulty
With Much Difficulty With Much Difficulty
With Some Difficulty With Some Difficulty
Without any Difficulty Without any Difficulty

# Definition Tags
Scale of the difficulty the subject/participant has in being out of bed for most of the day Short Description Description

# Designation Tags
Be out bed most of day difficulty scale Preferred Question Text
Are you able to be out of bed most of the day?

# Identifier Origin Version
C59777 NHLBI ID N/A
BeOutBedMostOfDayDffcltyScl BRICS Variable Name N/A
0BHiDu2Y7u NLM CDEs 12-02-2025-download