Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Rare Disease Family History GRDR Demographic information
Patient and caregiver demographic information
 NIH CDEs
  • ▼ GRDR
    • ▼ Requirement
      • Required
    • ▼ Category
      • Family History

# Definition Datatype

UUID: e6b88fbd-7c2a-587e-adf6-ad0fa4dd386f

None Daughter Granddaughter Grandson Half-brother Half-sister Maternal Aunt Maternal Cousin Maternal Grandfather Maternal Grandmother Maternal Uncle Brother Father Mother Sister Nephew Niece Paternal Aunt Paternal Cousin Paternal Grandfather Paternal Grandmother Paternal Uncle Son Don't know Externally Defined

# Definition Tags

UUID: e9277f56-7150-5cf8-9063-405b7b5462ff

None Daughter Granddaughter Grandson Half-brother Half-sister Maternal Aunt Maternal Cousin Maternal Grandfather Maternal Grandmother Maternal Uncle Brother Father Mother Sister Nephew Niece Paternal Aunt Paternal Cousin Paternal Grandfather Paternal Grandmother Paternal Uncle Son Don't know Health

UUID: fd0544de-0d66-531b-a67c-5b1e20b4b0f1

Participant-reported Question

# Designation Tags

UUID: 0cdbce75-c627-5334-bdd9-8573ab725a62

Rare Disease Family History Question

UUID: f80b713c-edb9-50bf-97fd-00eb9838e209

Which family members also are known to have the participant’s rare disease? Health

# Identifier Origin Version

UUID: 041c2ba9-21df-5947-b163-819f7d36d01a

GRDR030 GRDR N/A

UUID: 6b9464e0-2476-56a7-9b2a-51433aad2ccc

oJBOOtPmZgA NLM CDEs 12-02-2025-download