Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Using any number from 0 to 10, where 0 is no pain and 10 is the worst pain imaginable, how severe was your pain during your last pain attack (crisis)? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Pain
          • Patient Reported Outcomes
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: 3fecb102-a38f-5aac-9e86-08f36246587d

Value List

# Permissible value Value meaning name

UUID: 062baafd-69d1-5899-886b-1a392829b27a

1 1

UUID: a2207a0d-dcaa-54db-ae87-d5592293c457

2 2

UUID: 4cd4cc28-a997-5c1d-af10-ce77406f277f

3 3

UUID: 32e9c473-10b7-56d9-bd42-b1d5a192959e

4 4

UUID: c75a3f88-b09c-592a-9704-c299f593002c

5 5

UUID: 85795654-26e5-5112-a628-d04d5b201ce6

6 6

UUID: aeefd20c-fdf3-5f83-b0f9-9a185915f52b

7 7

UUID: ed23c2a1-a28b-5285-b564-825fc424a682

8 8

UUID: 09e498e3-37e3-5f1e-a551-b2d87e87bebe

9 9

UUID: fb229eef-b450-52bd-9b55-f5b128a4e868

I've never had a pain attack (crises) I've never had a pain attack (crises)

UUID: 3bf4be88-dbba-59fc-a541-1bc4797b960d

No Pain No Pain

UUID: c425661b-89b5-550b-bcfd-6e8a136611a7

Worst pain imaginable Worst pain imaginable

# Definition Tags

UUID: 54dc601b-4266-5790-a0af-44b1c2b609c2

Grade of pain severity during the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: 105985ba-98f9-55f0-84c5-c6560c772f7b

Using any number from 0 to 10, where 0 is no pain and 10 is the worst pain imaginable, how severe was your pain during your last pain attack (crisis)?

UUID: d7314bef-2378-5036-b897-674358283122

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent severity grade Preferred Question Text

# Identifier Origin Version

UUID: 031b7e46-e337-5647-9700-309be38ea1ff

SCwHm0HuZ7 NLM CDEs 12-02-2025-download

UUID: d7f446f4-36ab-5fdd-8aac-6f9dd36924ae

C58665 NHLBI ID N/A

UUID: 98d98d65-ca53-5c1d-b5ba-2f8e4a0d60ea

ASCQMePnEpsdCrsMsRctSvrGrade BRICS Variable Name N/A