Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Does the patient have a history of three or more severe vaso-occlusive pain crises per year in the two-year period preceding enrollment despite the institution of supportive care measures (i.e. a pain management plan and/or treatment with hydroxyurea); painful episodes related to priapism, osteonecrosis or any sickle-related complication? NHLBI Disease characterization
Including Alzheimer's Disease (AD)/AD-Related Dementias (ADRD) diagnosis and multiple chronic conditions (MCCs)
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Protocol Experience
          • Participant/Subject Identification, Eligibility, and Enrollment
          • Study Management
      • ▼ Classification
        • Proposed

# Datatype

UUID: 35454f98-848a-5b3c-ab4a-284b0b0dc723

Value List

# Permissible value Value meaning name

UUID: e5a4cad7-903f-52cd-ac4b-55d2689de056

No No

UUID: 75c67488-17e5-529e-8ad3-c49463fffad9

Unavailable Unavailable

UUID: 7c409437-223b-52d7-bea9-f87e30e3525c

Yes Yes

# Definition Tags

UUID: 4bc3d2ab-26fa-5362-86d3-558f4f60e812

Code indicating whether the subject/participant has a history of three or more vaso-occlusive pain crises per year prior to enrollment despite supportive care; or painful episodes related to priapism, osteonecrosis, or any sickle-related complication. Short Description Description

# Designation Tags

UUID: 742aa793-4cde-5fa6-862e-82cbe805970c

Does the patient have a history of three or more severe vaso-occlusive pain crises per year in the two-year period preceding enrollment despite the institution of supportive care measures (i.e. a pain management plan and/or treatment with hydroxyurea); painful episodes related to priapism, osteonecrosis or any sickle-related complication?

UUID: 525abec2-7813-5ade-9189-876b742d15dc

History pain crisis sickle related complication over two per year prior enrollment indicate code Preferred Question Text

# Identifier Origin Version

UUID: 049d54dc-dfaf-5cb4-9a73-0e656c99f89f

wG2oLcwaF NLM CDEs 12-02-2025-download

UUID: a053e940-8fce-5a3d-8a5e-765e66593af1

C58717 NHLBI ID N/A

UUID: 45a8e447-c7eb-5912-abb1-35107f80de00

HxPnCrScReCoOv2PrYrPriEnrInCod BRICS Variable Name N/A