| Name | Steward Organization | Suggested Domain | Suggested Domain Description | Cde Group | Classification |
|---|---|---|---|---|---|
| Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - respiratory insufficiency score | NINDS | Health assessment |
e.g., Activities of Daily Living (ADL), Instrumental ADL, cognitive function, etc. |
NIH CDEs |
|
| # | Datatype |
|---|---|
|
|
Value List |
| # | Permissible value | Value meaning name | Value meaning definition |
|---|---|---|---|
|
|
0 | Invasive mechanical ventilation by intubation or tracheostomy | Invasive mechanical ventilation by intubation or tracheostomy |
|
|
1 | Continuous use of NIPPV during the night and day | Continuous use of NIPPV during the night and day |
|
|
2 | Continuous use of NIPPV during the night | Continuous use of NIPPV during the night |
|
|
3 | Intermittent use of NIPPV | Intermittent use of NIPPV |
|
|
4 | None | None |
| # | Definition |
|---|---|
|
|
Respiratory insufficiency score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) |
| # | Designation |
|---|---|
|
|
Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - respiratory insufficiency score |
| # | Identifier | Origin | Version |
|---|---|---|---|
|
|
ALSFRSRRespInsuffcyScore | BRICS Variable Name | N/A |
|
|
gJqk3AK4WTq | NLM CDEs | 12-02-2025-download |
|
|
C11988 | NINDS | 3 |