Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Does the patient have a history of two or more episodes of acute chest syndrome (ACS) in the two-year period preceding enrollment despite the institution of supportive care measures (i.e. asthma therapy and/or hydroxyurea)? NHLBI Disease characterization
Including Alzheimer's Disease (AD)/AD-Related Dementias (ADRD) diagnosis and multiple chronic conditions (MCCs)
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Protocol Experience
          • Participant/Subject Identification, Eligibility, and Enrollment
          • Study Management
      • ▼ Classification
        • Proposed

# Datatype

UUID: 35454f98-848a-5b3c-ab4a-284b0b0dc723

Value List

# Permissible value Value meaning name

UUID: e5a4cad7-903f-52cd-ac4b-55d2689de056

No No

UUID: 75c67488-17e5-529e-8ad3-c49463fffad9

Unavailable Unavailable

UUID: 7c409437-223b-52d7-bea9-f87e30e3525c

Yes Yes

# Definition Tags

UUID: 21d15bec-1512-5bb7-87f2-1df2b13e06e7

Code indicating whether the subject/participant has a history of acute chest syndrome (ACS) during the two years prior to enrollment, despite the institution of supportive care measures. Short Description Description

# Designation Tags

UUID: 7121570d-3624-5c56-af7d-22476f26133f

History acute chest syndrome despite care two year before enrollment indicate code Preferred Question Text

UUID: dc744fac-4f39-5149-a384-eb4e7e17139b

Does the patient have a history of two or more episodes of acute chest syndrome (ACS) in the two-year period preceding enrollment despite the institution of supportive care measures (i.e. asthma therapy and/or hydroxyurea)?

# Identifier Origin Version

UUID: 3a16c142-24aa-506e-b8ec-abaf8bf337a5

C58714 NHLBI ID N/A

UUID: 821ca2d0-0241-5733-a1cd-3a2b0a5c4a36

n6GIUhs9cI NLM CDEs 12-02-2025-download

UUID: 0988b978-977e-5381-aeb7-5e585246ad78

HxACSDsptCr2YrBfrEnrIndCode BRICS Variable Name N/A