ReCARDO CDE Engine

Name	Steward Organization	Suggested Domain	Suggested Domain Description	Cde Group	Classification
36-item Short Form Health Survey (SF-36) - Now heath score	NINDS	Health assessment	e.g., Activities of Daily Living (ADL), Instrumental ADL, cognitive function, etc.	NIH CDEs	▼ NINDS ▼ Disease ▼ Amyotrophic Lateral Sclerosis ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Cerebral Palsy ▼ Classification Exploratory ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Chiari I Malformation ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Facioscapulohumeral muscular dystrophy (FSHD) ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Friedreich's Ataxia ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Headache ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Huntington’s Disease ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Mitochondrial Disease ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Multiple Sclerosis ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Activities of Daily Living/Performance ▼ Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ▼ Classification Supplemental-Highly Recommended ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Myasthenia Gravis ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Myotonic Dystrophy ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Neuromuscular Diseases ▼ Classification Supplemental-Highly Recommended ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Parkinson's Disease ▼ Classification Supplemental-Highly Recommended ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Spinal Cord Injury ▼ Classification Exploratory ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Spinal Muscular Atrophy ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Sport Related Concussion ▼ Comprehensive ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Persistent/Chronic ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Subacute ▼ Classification Exploratory ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Stroke ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Quality of Life/Patient Reported Outcomes ▼ Traumatic Brain Injury ▼ Acute Hospitalized ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Global Outcome ▼ Comprehensive ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Global Outcome ▼ Concussion/Mild TBI ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Global Outcome ▼ Epidemiology ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Global Outcome ▼ Moderate/Severe TBI: Rehabilitation ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Global Outcome ▼ Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage ▼ Classification Supplemental ▼ Domain ▼ Outcomes and End Points Health-Related Quality of Life Outcome ▼ Domain ▼ Outcomes and End Points Activities of Daily Living/Performance Global Outcome Health-Related Quality of Life Outcome Quality of Life/Patient Reported Outcomes ▼ Population Adult Pediatric ▼ NINR ▼ Symptoms ▼ Affective Affective Well-Being

#	Datatype
UUID: d72f5fb1-7bb1-5a8d-9296-08e06ea568f9	Value List

#	Permissible value	Value meaning name	Value meaning definition
UUID: 862c6919-0045-5ec6-af33-efe0fdf3c0b3	1	Much better now than one year ago	Much better now than one year ago
UUID: 260cb2f6-487f-5e7c-b0fe-682e2020e485	2	Somewhat better now than one year ago	Somewhat better now than one year ago
UUID: 378da1e9-d664-56da-8b7e-70dee1d3688f	3	About the same	About the same
UUID: eb9898dc-27cd-55a8-acfc-00fe03250b4a	4	Somewhat worse now than one year ago	Somewhat worse now than one year ago
UUID: 7d1c743a-aacf-5e2a-b700-629eddac5383	5	Much worse now than one year ago	Much worse now than one year ago

#	Definition
UUID: 6b3616e9-724e-5cd9-91c1-fa52cbd8896c	Score of surveyee-reported present general heath compared to a year ago as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

#	Designation
UUID: 729505ad-d98a-53d9-94ba-f13fb589d45e	36-item Short Form Health Survey (SF-36) - Now heath score

#	Identifier	Origin	Version
UUID: 1d3252e5-a8f8-5164-a33d-733ba86da99f	C08502	NINDS	3
UUID: 4f062333-27b3-5bba-ab89-aa956b3273e7	SF36NowHlthScore	BRICS Variable Name	N/A
UUID: 61a054f8-17fb-5864-b32e-b69df86fa328	8DEuCKkMCQ5	NLM CDEs	12-02-2025-download