Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Are you the primary caregiver for YOUR STUDY PARTNER, who needs extra assistance due to a disability, condition, or illness? We define a primary caregiver as the person who is primarily responsible for helping make medical care decisions, is emotionally invested in the person's care, and provides help with daily activities (or almost daily). Daily caregiving activities may include helping with medical or therapeutic treatments, preparing meals, and/or helping with dressing and/or bathing. Caregivers may be caring for a loved one with dementia, or be the parents to a child with developmental delays or burdensome health conditions, for example. ADNI Demographic information
Patient and caregiver demographic information
Other NIA-funded studies
  • ADNI
    • CRFNAME: Brain Health Registry SP CAREGIVER BURDEN
      • TBLNAME: BHR_SP_CAREGIVER_BURDEN
        • FLDNAME: QID53
          • DD_CRF_VERSION: None

# Datatype
Value List

# Permissible value Value meaning name
1 Yes, I am a caregiver for MY STUDY PARTNER
2 No, I am not a caregiver for MY STUDY PARTNER
3 I am not a caregiver based on this definition, but I do help MY STUDY PARTNER with some health issues

# Identifier Origin Version
NOPHASE_Brain Health Registry SP CAREGIVER BURDEN_BHR_SP_CAREGIVER_BURDEN_QID53_NODD_CRF_VERSION ADNI-PHASE+CRFNAME+TBLNAME+FLDNAME+DD_CRF_VERSION ADNI_01-12-2025