Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - gastrostomy status NINDS Health assessment
e.g., Activities of Daily Living (ADL), Instrumental ADL, cognitive function, etc.
 NIH CDEs
  • ▼ NINDS
    • ▼ Disease
      • ▼ Amyotrophic Lateral Sclerosis
        • ▼ Classification
          • Core
        • ▼ Domain
          • ▼ Outcomes and End Points
            • Functional Outcomes
    • ▼ Domain
      • ▼ Outcomes and End Points
        • Functional Outcomes
    • ▼ Population
      • Adult

# Datatype

UUID: 89c32ec6-968f-5411-84f5-ac240ed3b0d6

Value List

# Permissible value Value meaning name Value meaning definition

UUID: d3942660-f5bb-5c9c-99b8-dc1008de8fee

No No No

UUID: 98154952-fef8-58b1-acb9-4bbf599f1863

Yes Yes Yes

# Definition

UUID: 7a8b23c7-66e6-58de-8546-5563afedfad9

Whether the participant/subject has a gastrostomy tube on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R)

# Designation

UUID: 4c2c6453-1a59-5a99-9581-215c77c2acff

Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - gastrostomy status

# Identifier Origin Version

UUID: 1512ab80-bac2-5bb1-a5da-085bec5e7898

C11979 NINDS 3

UUID: d8d20a89-d92b-5ea7-8e6a-c394a007efd4

ALSFRSRGastronomyStatus BRICS Variable Name N/A

UUID: 0642b8cd-e4a7-5650-973e-6bc849b88ff6

CYJP6EMwU1N NLM CDEs 12-02-2025-download