Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Quality of Life - Sleep difficultly assessment past week scale NINDS Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NINDS
    • ▼ Disease
      • ▼ General (For all diseases)
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ NIH Resources
            • NIH Resources
      • ▼ Sport Related Concussion
        • ▼ Acute
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
        • ▼ Comprehensive
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
        • ▼ Persistent/Chronic
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
        • ▼ Subacute
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
    • ▼ Domain
      • ▼ NIH Resources
        • NIH Resources
      • ▼ Outcomes and End Points
        • Quality of Life/Patient Reported Outcomes
    • ▼ Population
      • Adult
      • Pediatric
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ NIH Resources
          • NIH Resources
        • ▼ Outcomes and End Points
          • Emotional Status
      • ▼ Classification
        • Proposed

# Datatype

UUID: 19404dcc-4415-53d1-b184-6495e8074b6d

Value List

# Permissible value Value meaning name Value meaning definition

UUID: c5200e63-20b7-5f44-8420-1dcd3e4d95bf

1 Never Never

UUID: 7b031c7c-77c6-5081-8122-eb0659c6337b

2 Rarely Rarely

UUID: 09edc822-2478-5a76-8ac1-6549d8ad53d7

3 Sometimes Sometimes

UUID: 6a5bcfce-f994-5fcd-b20a-45cd944b3f44

4 Often Often

UUID: c89b3fe1-edf5-508c-8b8b-d5728638dff2

5 always always

# Definition

UUID: 8db5d89a-a1b4-5470-abd6-d5ed465ee2a1

The scale which represents how often the participant had difficulty sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

# Designation

UUID: 4eb63f7d-dd70-50d5-a40b-a30105557127

Quality of Life - Sleep difficultly assessment past week scale

# Identifier Origin Version

UUID: 80456bf3-2014-5b51-8248-cae8f6f4c8e2

C20790 NINDS 1

UUID: df25a41f-4281-550a-bcc4-45c7e49d6696

PROMISDifficultySleepingScale BRICS Variable Name N/A

UUID: 454ec378-46d9-52a1-9f72-0d778ec1b49c

7kYqZOWW2de NLM CDEs 12-02-2025-download