Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Using any number from 0 to 10, where 0 is the worst health care possible and 10 is the best health care possible, what number would you use to rate all your child’s health care in the last 6 months? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Assessments and Examinations
          • Hospital/Care Management
      • ▼ Classification
        • Proposed

# Datatype

UUID: 1cf21ad2-47cd-5e23-b2e9-5457f431e3e0

Value List

# Permissible value Value meaning name

UUID: 062baafd-69d1-5899-886b-1a392829b27a

1 1

UUID: a2207a0d-dcaa-54db-ae87-d5592293c457

2 2

UUID: 4cd4cc28-a997-5c1d-af10-ce77406f277f

3 3

UUID: 32e9c473-10b7-56d9-bd42-b1d5a192959e

4 4

UUID: c75a3f88-b09c-592a-9704-c299f593002c

5 5

UUID: 85795654-26e5-5112-a628-d04d5b201ce6

6 6

UUID: aeefd20c-fdf3-5f83-b0f9-9a185915f52b

7 7

UUID: ed23c2a1-a28b-5285-b564-825fc424a682

8 8

UUID: 09e498e3-37e3-5f1e-a551-b2d87e87bebe

9 9

UUID: 965b60c4-cc9f-5307-a0be-cee800941d1f

Best health care possible Best health care possible

UUID: 2db601da-dd77-582e-b75d-368522eea959

Worst health care possible Worst health care possible

# Definition Tags

UUID: 947f564b-6124-571b-9dfe-f29ebdf722b3

Scale for rating the child's health care over the last 6 months. Short Description Description

# Designation Tags

UUID: e6c1f31f-e268-5a4a-aab1-9ac5f40f3e19

Using any number from 0 to 10, where 0 is the worst health care possible and 10 is the best health care possible, what number would you use to rate all your child’s health care in the last 6 months?

UUID: 6a0af261-b6bd-5a76-8f67-d27c29023d6a

Child health care rating last 6 month scale Preferred Question Text

# Identifier Origin Version

UUID: 88c75565-7c46-5d43-b48a-fab2db50fa4f

ChldHCRtngLst6MoScl BRICS Variable Name N/A

UUID: 39464109-f76c-5d3c-90b4-44b7cbf2a3bb

C59275 NHLBI ID N/A

UUID: af24a124-d64c-5ea9-82f3-075b57db2baa

sUlbBL9WRJ NLM CDEs 12-02-2025-download