| Name | Steward Organization | Suggested Domain | Suggested Domain Description | Cde Group | Classification |
|---|---|---|---|---|---|
| Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - orthopnea score | NINDS | Health assessment |
e.g., Activities of Daily Living (ADL), Instrumental ADL, cognitive function, etc. |
NIH CDEs |
|
| # | Datatype |
|---|---|
|
|
Value List |
| # | Permissible value | Value meaning name | Value meaning definition |
|---|---|---|---|
|
|
0 | Unable to sleep | Unable to sleep |
|
|
1 | Can only sleep sitting up | Can only sleep sitting up |
|
|
2 | Needs extra pillow in order to sleep (more than two) | Needs extra pillow in order to sleep (more than two) |
|
|
3 | Some difficulty sleeping at night due to shortness of breath, does not routinely use more than two pillows | Some difficulty sleeping at night due to shortness of breath, does not routinely use more than two pillows |
|
|
4 | None | None |
| # | Definition |
|---|---|
|
|
Orthopnea score on the Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (ALSFRS-R) |
| # | Designation |
|---|---|
|
|
Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) - orthopnea score |
| # | Identifier | Origin | Version |
|---|---|---|---|
|
|
ks_QZ18313F | NLM CDEs | 12-02-2025-download |
|
|
C11987 | NINDS | 3 |
|
|
ALSFRSROrthpneaScore | BRICS Variable Name | N/A |