Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Caregiver primary type NINDS Demographic information
Patient and caregiver demographic information
 NIH CDEs
  • ▼ NINDS
    • ▼ Disease
      • ▼ Cerebral Palsy
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Participant Characteristics
            • Social Status
      • ▼ Congenital Muscular Dystrophy
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Participant Characteristics
            • Social Status
      • ▼ Myotonic Dystrophy
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Participant Characteristics
            • Social Status
      • ▼ Spinal Muscular Atrophy
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Participant Characteristics
            • Social Status
      • ▼ Sport Related Concussion
        • ▼ Acute
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Participant Characteristics
              • Social Status
        • ▼ Comprehensive
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Participant Characteristics
              • Social Status
        • ▼ Persistent/Chronic
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Participant Characteristics
              • Social Status
        • ▼ Subacute
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Participant Characteristics
              • Social Status
    • ▼ Domain
      • ▼ Participant Characteristics
        • Social Status
    • ▼ Population
      • Adult
      • Pediatric
  • ▼ NINR
    • Demographics

# Datatype

UUID: 4233a29b-415c-56c2-808d-3c6cb4814efa

Value List

# Permissible value Value meaning name Value meaning definition

UUID: 39b16cbf-610d-5b35-99f3-1564e1bea4be

Alone Alone Alone

UUID: c443b717-177d-554b-bca4-2601212f875e

Child Child Child

UUID: 2e038162-69e7-5239-9f0f-5231af743990

Group living situation, boarding house Group living situation, boarding house Group living situation, boarding house

UUID: 6a5e6288-0b1e-56fd-b1fb-8a0952f94abb

Home aide Home aide Home aide

UUID: 1c19cad9-d597-535c-89d8-6c2928bc7390

Homeless Homeless Homeless

UUID: 463321ed-5a8d-5d31-872b-113b2f126163

Long-term care/nursing facility staff Long-term care/nursing facility staff Long-term care/nursing facility staff

UUID: d6f6cc03-cb7d-5f3c-bbcb-3d2bfe4d69bd

Military barracks Military barracks Military barracks

UUID: 21fef106-661d-5ade-8b48-6105116bb60b

Other Other Other

UUID: 979462ce-0dcb-5aa1-9df0-faa3408c142d

Other patients (in hospital/nursing home) Other patients (in hospital/nursing home) Other patients (in hospital/nursing home)

UUID: f4594ba3-7e19-5663-a7d7-1afa58aebfa8

Other residents Other residents Other residents

UUID: ab598550-77a6-57ba-8c72-553513513d24

Other, specify Other, specify Other, specify

UUID: a0d85d93-b0cc-5071-9dcf-4e0ac5042c5d

Parent or legal guardian Parent or legal guardian Parent or legal guardian

UUID: dc0217a4-196d-5c25-a69e-8d2d2e17ecaf

Personal care attendant Personal care attendant Personal care attendant

UUID: eb34fbad-8671-58ba-ba3e-3f955b42b451

Roommates/friends Roommates/friends Roommates/friends

UUID: 3ababb37-0fbb-5891-9300-91dc212ca024

Self Self Self

UUID: c970682b-7ece-5d99-808b-2d6832a3737b

Sibling Sibling Sibling

UUID: 808e54bc-443c-51c1-a078-2dc086f46808

Spouse or partner Spouse or partner Spouse or partner

UUID: 9f6e823e-0f3e-5d33-aaba-e4e70619a0bd

Unable to obtain information Unable to obtain information Unable to obtain information

# Definition

UUID: 879a526e-f7cd-581d-af7f-f84218560af3

Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject

# Designation

UUID: 73867afd-1cdb-53f8-9f7a-7fefc9806908

Caregiver primary type

# Identifier Origin Version

UUID: 1adf17e9-8bb2-55b0-abfb-90d74c90e5a8

CaregvrPrimryType BRICS Variable Name N/A

UUID: 66bf10b9-5f2d-555b-ae90-5b13479cf085

cK4Pk8jTJbu NLM CDEs 12-02-2025-download

UUID: 9c089d03-7ed1-5612-85cd-9ff6c6a48fc0

C12605 NINDS 3