Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Has a doctor or nurse ever told you that you have eye damage called retinopathy? NHLBI Disease characterization
Including Alzheimer's Disease (AD)/AD-Related Dementias (ADRD) diagnosis and multiple chronic conditions (MCCs)
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Disease Related Events
          • History of Disease Event
        • ▼ Outcomes and End Points
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: 279226e4-a18f-5951-8855-b1b55c9bc9b9

Value List

# Permissible value Value meaning name

UUID: e5a4cad7-903f-52cd-ac4b-55d2689de056

No No

UUID: 7c409437-223b-52d7-bea9-f87e30e3525c

Yes Yes

# Definition Tags

UUID: c11409ac-59af-59f7-9db3-270d0dc89b61

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has retinopathy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: 31bb2f4d-fc2f-5bd0-b4fc-eb642e20abf4

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Retinopathy medical professional ever tell indicate code Preferred Question Text

UUID: 7ade9ab5-00be-5089-a8ac-07e3e71ccf2b

Has a doctor or nurse ever told you that you have eye damage called retinopathy?

# Identifier Origin Version

UUID: 39f84165-f3ed-56a1-bb27-05a8b6ce4323

C58657 NHLBI ID N/A

UUID: 961339e0-5902-5138-b786-b5bb5eab898e

ASCQMeRtnpthMedProEvrTlIndCode BRICS Variable Name N/A

UUID: 06b6d3a2-346b-576f-82c4-264f86b7d1f3

iWJogDFNzb NLM CDEs 12-02-2025-download