| Name | Steward Organization | Suggested Domain | Suggested Domain Description | Cde Group | Classification |
|---|---|---|---|---|---|
| In the past 12 months, when you went to the emergency room for this care, how often did you get it as soon as you wanted? | NHLBI | Health outcomes |
Patient and caregiver health outcomes |
NIH CDEs |
|
| # | Datatype |
|---|---|
|
|
Value List |
| # | Permissible value | Value meaning name |
|---|---|---|
|
|
Always | Always |
|
|
Never | Never |
|
|
Sometimes | Sometimes |
|
|
Usually | Usually |
| # | Definition | Tags |
|---|---|---|
|
|
Status of the frequency that the subject/participant received emergency room care for his or her sickle cell disease in a timely manner in the last 12 months | Short Description Description |
| # | Designation | Tags |
|---|---|---|
|
|
Emergency room sickle cell care received timely last 12 month frequency status | Preferred Question Text |
|
|
In the past 12 months, when you went to the emergency room for this care, how often did you get it as soon as you wanted? |
| # | Identifier | Origin | Version |
|---|---|---|---|
|
|
G0200X6na | NLM CDEs | 12-02-2025-download |
|
|
C59364 | NHLBI ID | N/A |
|
|
ERSCCarRecdTimlyLst12MoFrqStat | BRICS Variable Name | N/A |