Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In general, would you say your child's quality of life is: PROMIS / Neuro-QOL Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ PROMIS / Neuro-QOL
    • ▼ PROMIS Instruments
      • ▼ PROMIS Instruments
        • ▼ Parent Proxy Item Banks
          • ▼ Global Health
            • PROMIS Parent Proxy Scale v1.0 - Global Health 7
      • ▼ Other
        • PROMIS Parent Proxy Scale v1.0 - Global Health 7+2
  • ▼ NINR
    • Pediatric

# Datatype

UUID: 070efd91-9684-5c7c-8ff8-7868e52bab67

Value List

# Permissible value Value meaning name

UUID: cd5b932c-93a4-5050-9701-07c80daf9de7

1 Poor

UUID: d8d2fcc4-574f-54a4-9d75-07d9c7239013

2 Fair

UUID: c831f868-8cbf-5848-8f90-2df9b7c0272b

3 Good

UUID: 16c9b80b-f9fc-58f8-ad3a-446e88caaa96

4 Very Good

UUID: 947eca6c-c00a-5f94-ac62-dd561d94373e

5 Excellent

# Designation

UUID: eb8da229-8f37-5137-bd7a-5993bd627cfa

In general, would you say your child's quality of life is:

# Identifier Origin Version

UUID: 038b67d3-114c-5fb5-a9f2-6b115d2b3ef4

XJ_TP56CQX NLM CDEs 12-02-2025-download

UUID: fd41cfbe-1c50-51c5-9459-acc680c25f96

Global02_PXR1 Assessment Center N/A