Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Clinical event or milestone type NINDS Health assessment
e.g., Activities of Daily Living (ADL), Instrumental ADL, cognitive function, etc.
 NIH CDEs
  • ▼ NINDS
    • ▼ Disease
      • ▼ Amyotrophic Lateral Sclerosis
        • ▼ Classification
          • Exploratory
        • ▼ Domain
          • ▼ Outcomes and End Points
            • Functional Outcomes
      • ▼ Cerebral Palsy
        • ▼ Classification
          • Core
        • ▼ Domain
          • ▼ Participant History and Family History
            • General Health History
      • ▼ Spinal Muscular Atrophy
        • ▼ Classification
          • Core
        • ▼ Domain
          • ▼ Disease/Injury Related Events
            • History of Disease/Injury Event
    • ▼ Domain
      • ▼ Disease/Injury Related Events
        • History of Disease/Injury Event
      • ▼ Outcomes and End Points
        • Functional Outcomes
      • ▼ Participant History and Family History
        • General Health History
    • ▼ Population
      • Adult
      • Pediatric

# Datatype

UUID: 0926df76-be92-5cff-9d5c-fd9dfb706404

Value List

# Permissible value Value meaning name Value meaning definition

UUID: badd5651-7248-5661-846e-e4bdc899d2c7

Attend a day care group (with > 5 other children) Attend a day care group (with > 5 other children) Attend a day care group (with > 5 other children)

UUID: 912e8f3a-3cb8-54ea-8a6e-fbb8209b4690

Climb stairs Climb stairs Climb stairs

UUID: 3c2ff9d1-9b8d-5779-b663-c5948059dd81

Crawl- combat style Crawl- combat style Crawl- combat style

UUID: 92f3c6ed-d949-59b0-b179-14628d02656d

Crawl- four point Crawl- four point Crawl- four point

UUID: 43740cc5-29cc-5fec-a0b5-dca5c58f13e6

Cruise along furniture Cruise along furniture Cruise along furniture

UUID: bf2f46a3-01b1-55ea-a021-ae9243778aba

Death Death Death

UUID: 7ce92da0-20ba-5a18-9d95-632432a666d9

Have a cognitive/learning disability Have a cognitive/learning disability Have a cognitive/learning disability

UUID: 225a0479-15d9-53e8-8d29-00265cd18106

Head control Head control Head control

UUID: 0aa70715-e5c6-5b30-b262-ffe18824f4e1

Loss of ambulation Loss of ambulation Loss of ambulation

UUID: c594379e-f935-5887-b4d1-03cf920ba88b

Loss of speech Loss of speech Loss of speech

UUID: 0238df0d-fd06-5280-8b55-16f595add7a1

Maintain seated position supported Maintain seated position supported Maintain seated position supported

UUID: d854ceae-bee7-544b-9147-d92b21961aab

Maintain seated position unsupported Maintain seated position unsupported Maintain seated position unsupported

UUID: 7e8defa7-93c0-5415-a5c1-e33ea43b2818

Noninvasive ventilation (NIV) utilized Noninvasive ventilation (NIV) utilized Noninvasive ventilation (NIV) utilized

UUID: dae3bc66-2f6c-52db-97b1-5ad2354fd662

Percutaneous endoscopic gastrostomy (PEG)/feeding tube placement Percutaneous endoscopic gastrostomy (PEG)/feeding tube placement Percutaneous endoscopic gastrostomy (PEG)/feeding tube placement

UUID: c714079d-445c-5b84-9c57-6f9e045025f7

Raise both arms above head simultaneously Raise both arms above head simultaneously Raise both arms above head simultaneously

UUID: 2bfd2c2d-bee6-5c1b-b96a-220057420b08

Reaches for object Reaches for object Reaches for object

UUID: 7ecf4693-6e48-5c58-96ac-794a6111a809

Roll both ways Roll both ways Roll both ways

UUID: e65e1a65-8e0f-581e-ae5e-1facf46f07b7

Roll completely Roll completely Roll completely

UUID: 2186036e-8fb1-5452-9cde-5d4ad0130a7d

Self feeds Self feeds Self feeds

UUID: 77baffc0-8188-5cf3-80c2-d31acd5c0a85

Speak his/her first words by 12 months Speak his/her first words by 12 months Speak his/her first words by 12 months

UUID: ccf9eb3d-84ae-514d-ad92-10cd6c936493

Speak in complete sentences by 3 years Speak in complete sentences by 3 years Speak in complete sentences by 3 years

UUID: 85211759-430f-5796-925c-6778b3778850

Speak in two word combinations by 2 years Speak in two word combinations by 2 years Speak in two word combinations by 2 years

UUID: 082e38db-28b0-5da2-8c66-6fd7998ea6ac

Stand with support Stand with support Stand with support

UUID: 4c90d2d5-5bb5-5dd8-8be6-c7c0ba8747c1

Stand without support Stand without support Stand without support

UUID: 6e71b981-bda7-52e1-a0ee-d14395ae24e6

Tracheostomy performed Tracheostomy performed Tracheostomy performed

UUID: f89df75c-d120-5d1b-9cb6-59fd9ee9ab30

Uses spoon Uses spoon Uses spoon

UUID: 2c5cf42d-f904-5bc3-bb33-7089eddba3ee

Walk alone (without assistive device) Walk alone (without assistive device) Walk alone (without assistive device)

UUID: 72e973c4-d9dd-5380-a77c-757bc07e91e9

Walk by 17 months old Walk by 17 months old Walk by 17 months old

UUID: e1b25f0d-9e40-5eaa-93cc-a97aeab151da

Walk independently (without braces) Walk independently (without braces) Walk independently (without braces)

UUID: f3bce100-0f5f-5934-beae-a03f8ab472ed

Walk with hand held or assistive device Walk with hand held or assistive device Walk with hand held or assistive device

UUID: d5309925-178a-54f4-a7db-7a6d7e0bcf3c

Walk with support (hand, braces) Walk with support (hand, braces) Walk with support (hand, braces)

# Definition

UUID: d029af1e-19eb-5635-9311-fb96fd08ce47

Type of clinical event or milestone pertinent to the disease or disorder

# Designation

UUID: 42f593de-08e0-525c-a524-51ee5e9fa177

Clinical event or milestone type

# Identifier Origin Version

UUID: c6b58128-d891-5d55-804d-4bfe9df864bc

ClinEvntMilestoneTyp BRICS Variable Name N/A

UUID: 5b6b2bbc-d3bd-5463-9c91-5c797b4f3ae3

C10615 NINDS 3

UUID: 066b9fc4-2624-598e-8c10-efbf14f75eeb

mrqWAMxtyVJ NLM CDEs 12-02-2025-download