Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Does the patient have Hemoglobin SS disease (HbSS) or Hemoglobin Sβ° (HbSβ°) Thalassemia? NHLBI Disease characterization
Including Alzheimer's Disease (AD)/AD-Related Dementias (ADRD) diagnosis and multiple chronic conditions (MCCs)
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Protocol Experience
          • Participant/Subject Identification, Eligibility, and Enrollment
          • Study Management
      • ▼ Classification
        • Proposed

# Datatype

UUID: 2966e1be-3ac8-59a3-9685-256e9a7f8935

Value List

# Permissible value Value meaning name

UUID: e5a4cad7-903f-52cd-ac4b-55d2689de056

No No

UUID: 7c409437-223b-52d7-bea9-f87e30e3525c

Yes Yes

# Definition Tags

UUID: 0964a458-117a-5ddf-986d-cdd795d5960d

Code indicating whether the subject/participant has hemoglobin SS (HbSS) disease or hemoglobin sickle beta thalassemia (HbSBeta) zero disease. Short Description Description

# Designation Tags

UUID: 4dd82f69-37c5-501d-8ff7-0634f98916a0

Hemoglobin SS beta thalassemia zero indicate code Preferred Question Text

UUID: a436cce7-5080-5cef-bd0b-14c760ca6e8b

Does the patient have Hemoglobin SS disease (HbSS) or Hemoglobin Sβ° (HbSβ°) Thalassemia?

# Identifier Origin Version

UUID: c7a425bc-561f-565e-a540-445c0b6992ee

C58726 NHLBI ID N/A

UUID: 53b21a84-4d6e-5485-a4d4-b87e3d783170

HbSSBetaThalZeroIndCode BRICS Variable Name N/A

UUID: 0b8dac26-924f-5f15-a647-b43d8b426af4

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