Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Caregiver primary extended type NINDS Demographic information
Patient and caregiver demographic information
NIH CDEs
  • NINDS
    • Disease
      • Sport Related Concussion
        • Acute
          • Classification
            • Supplemental
          • Domain
            • Participant Characteristics
              • Demographics
        • Comprehensive
          • Classification
            • Supplemental
          • Domain
            • Participant Characteristics
              • Demographics
        • Persistent/Chronic
          • Classification
            • Supplemental
          • Domain
            • Participant Characteristics
              • Demographics
        • Subacute
          • Classification
            • Supplemental
          • Domain
            • Participant Characteristics
              • Demographics
    • Domain
      • Participant Characteristics
        • Demographics
    • Population
      • Adult
      • Pediatric

# Datatype
Value List

# Permissible value Value meaning name Value meaning definition
Adoptive father Adoptive father Adoptive father
Adoptive mother Adoptive mother Adoptive mother
Adoptive parents Adoptive parents Adoptive parents
Biological father Biological father Biological father
Biological father - not a primary caregiver Biological father - not a primary caregiver Biological father - not a primary caregiver
Biological mother Biological mother Biological mother
Biological mother - not a primary caregiver Biological mother - not a primary caregiver Biological mother - not a primary caregiver
Biological parents Biological parents Biological parents
Child Child Child
Grandfather Grandfather Grandfather
Grandmother Grandmother Grandmother
Home aide Home aide Home aide
Legal guardian Legal guardian Legal guardian
Long-term care/nursing facility staff Long-term care/nursing facility staff Long-term care/nursing facility staff
Other, specify Other, specify Other, specify
Parent Parent Parent
Relative Relative Relative
Self Self Self
Sibling Sibling Sibling
Spouse or partner Spouse or partner Spouse or partner
Stepfather Stepfather Stepfather
Stepmother Stepmother Stepmother
Stepparent Stepparent Stepparent
Unknown Unknown Unknown

# Definition
Type of relationship between the person who acts as the primary caregiver for the participant/subject and the participant/subject

# Designation
Caregiver primary extended type

# Identifier Origin Version
C21805 NINDS 1
CaregvPrimryExtendType BRICS Variable Name N/A
mJxcbBcA9Q NLM CDEs 12-02-2025-download