Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
First concern NICHD Demographic information
Patient and caregiver demographic information
 NIH CDEs
  • ▼ NICHD
    • NBSTRN Duchenne Muscular Dystrophy (DMD)

# Datatype

UUID: e4b42748-9d88-5a7d-8441-e9cebce1c583

Value List

# Permissible value Value meaning name

UUID: f0a8ee59-6ec6-5239-b6a7-e7c2a835c632

1 Family or primary caregiver

UUID: 8b82873f-c96a-529d-a2c1-adaa81e6c5cd

2 Physician

UUID: b9bd0432-2ecb-5464-97b6-53ac67881d8e

3 Day care

UUID: 1f97d761-1fba-5fee-8045-a44c33ca351f

4 School

UUID: 7da352ec-eb2d-560d-80c0-3a0490cc0192

5 Unknown

UUID: 3c3d47e4-786d-50c6-91ac-9607f6dd08eb

6 Other

# Designation Tags

UUID: 814db5ff-593c-5f52-9d34-2676a560ef1c

First concern NICHD

# Identifier Origin Version

UUID: f9a65edf-76bf-5250-8a85-803fdded385d

pv_fc NICHD Variable Name N/A

UUID: d8f4ed34-a894-57e7-8267-044cb3b67298

VoARCjymGI NLM CDEs 12-02-2025-download