Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Patient status at time of NBS reporting to specialty center NICHD Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NICHD
    • NBSTRN Core

# Datatype

UUID: a31f3380-5496-569f-a886-5818dc5f8fdf

Value List

# Permissible value Value meaning name

UUID: b0894f73-fe22-5dc9-aec8-07623e44bd64

1 Unknown

UUID: a23023cd-0ab0-5751-ae20-40c38a35f61a

2 Well

UUID: 787e1d45-ed91-549b-8551-caef019742d7

3 Symptomatic

UUID: e92e4656-9dd3-5a71-b990-48757402de04

4 Deceased

# Definition

UUID: 438c73e6-044a-54b6-a37b-5579bf28b588

Indicates patient status at the time that the newborn screening program reports case to specialty care center

# Designation Tags

UUID: 8bc92f9f-9960-5a40-b64e-3c479d016a64

Patient status at time of NBS reporting to specialty center Question Text

# Identifier Origin Version

UUID: 1faa98a8-8219-5bb4-8054-913331aec73d

X1igjf28H1v NLM CDEs 12-02-2025-download