Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Quality of Life in Neurological Disorders (Neuro-Qol) - Frustration tired for action fatigue assessment past week scale NINDS Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NINDS
    • ▼ Disease
      • ▼ General (For all diseases)
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ NIH Resources
            • NIH Resources
      • ▼ Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
        • ▼ Classification
          • Exploratory
        • ▼ Domain
          • ▼ Outcomes and End Points
            • Fatigue
      • ▼ Neuromuscular Diseases
        • ▼ Classification
          • Exploratory
        • ▼ Domain
          • ▼ Outcomes and End Points
            • Fatigue
      • ▼ Sport Related Concussion
        • ▼ Acute
          • ▼ Classification
            • Exploratory
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
        • ▼ Comprehensive
          • ▼ Classification
            • Exploratory
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
        • ▼ Persistent/Chronic
          • ▼ Classification
            • Exploratory
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
        • ▼ Subacute
          • ▼ Classification
            • Exploratory
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
    • ▼ Domain
      • ▼ NIH Resources
        • NIH Resources
      • ▼ Outcomes and End Points
        • Fatigue
        • Quality of Life/Patient Reported Outcomes
    • ▼ Population
      • Adult
      • Pediatric

# Datatype

UUID: 19404dcc-4415-53d1-b184-6495e8074b6d

Value List

# Permissible value Value meaning name Value meaning definition

UUID: c5200e63-20b7-5f44-8420-1dcd3e4d95bf

1 Never Never

UUID: 7b031c7c-77c6-5081-8122-eb0659c6337b

2 Rarely Rarely

UUID: 09edc822-2478-5a76-8ac1-6549d8ad53d7

3 Sometimes Sometimes

UUID: 6a5bcfce-f994-5fcd-b20a-45cd944b3f44

4 Often Often

UUID: c89b3fe1-edf5-508c-8b8b-d5728638dff2

5 always always

# Definition

UUID: f5aaa499-11f0-56ea-b40c-c830d78c1b7f

The scale representing how often the participant felt frustrated by being too tired to do the things they wanted to do in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).

# Designation

UUID: 6905ccf0-afe9-5457-bad2-ef171359a612

Quality of Life in Neurological Disorders (Neuro-Qol) - Frustration tired for action fatigue assessment past week scale

# Identifier Origin Version

UUID: 78f57235-cb39-5ca1-9bc8-08f33c40cdff

C20550 NINDS 1

UUID: 0aa1bbc0-be1a-53ab-a44b-d66c9a7e84d9

Q1zJ_bW3ul NLM CDEs 12-02-2025-download

UUID: 25b60e8a-3a4b-5528-826d-bcc39ea6554b

NeuroQolFrustTiredThingsScale BRICS Variable Name N/A