Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In the past 7 days, how often were you very worried about needing to go to the hospital? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Emotional Status
          • Patient Reported Outcomes
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: d3d6febe-9530-5bd2-b5c3-b3f27fcb2394

Value List

# Permissible value Value meaning name

UUID: 991b3763-6312-5a65-82e0-fcfecfb80b94

Always Always

UUID: 59fee3f0-0bab-532d-ba05-9c316c805cc5

Never Never

UUID: a05b6005-2e9e-5bcb-b106-a95b968991dd

Often Often

UUID: 9e77834e-e872-5576-8ed8-d84cd3a0b3dd

Rarely Rarely

UUID: 014f7a63-656c-57c1-994d-b625b7508542

Sometimes Sometimes

# Definition Tags

UUID: cc16d8dc-f5f5-5c93-be92-fc35ab4c33e6

Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: 7c415809-3ddb-5ae4-8fa8-1436c213b550

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry hospital need go past 7 day frequency scale Preferred Question Text

UUID: 54216ce9-3f55-5abc-893d-66fdee12b9d7

In the past 7 days, how often were you very worried about needing to go to the hospital?

# Identifier Origin Version

UUID: 28d75854-8866-5a64-8544-fea96226e320

W7qUsDaNK9 NLM CDEs 12-02-2025-download

UUID: ed09d02a-b862-51bc-bcd2-84f9a14962c3

C58648 NHLBI ID N/A

UUID: c958d75c-4465-5097-b3ed-938b623fabf1

ASCQMeWryHsptlNedGoPs7DyFrqScl BRICS Variable Name N/A