Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem hard social life indicator NINDS Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NINDS
    • ▼ Disease
      • ▼ Amyotrophic Lateral Sclerosis
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Outcomes and End Points
            • Quality of Life/Patient Reported Outcomes
      • ▼ Parkinson's Disease
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Outcomes and End Points
            • Other Non-Motor
    • ▼ Domain
      • ▼ Outcomes and End Points
        • Other Non-Motor
        • Quality of Life/Patient Reported Outcomes
    • ▼ Population
      • Adult

# Datatype

UUID: 87aee515-1e89-5d83-a280-eff849ca86c9

Value List

# Permissible value Value meaning name Value meaning definition

UUID: ec15b4fe-ae90-5bfb-ae4a-6a698db05d93

1 Strongly agree Strongly agree

UUID: 4fe8c35a-a0c2-5071-baf1-dcbfccfebbb8

2 Agree Agree

UUID: 40abe317-0f1d-53df-9fac-94dfa10f474b

3 Uncertain Uncertain

UUID: 4d446589-c44b-5e1c-8722-881dc760fe60

4 Disagree Disagree

UUID: 9a1fe588-f791-54a1-9b35-a6e0a45663d3

5 Strongly disagree Strongly disagree

# Definition

UUID: 4b99433b-b6ff-5122-8644-2106d0aab40a

Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem makes it hard to have a social life. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).

# Designation

UUID: cf2b5261-4ea7-5f7e-b367-2ad78cf2fe9b

Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem hard social life indicator

# Identifier Origin Version

UUID: ad215eb2-2fbb-58f8-b93e-318f8ad5cd21

C10310 NINDS 3

UUID: 08229ade-e1ff-5fbd-ad4a-14aff395f5fa

SWALQOLSwllwProbHrdSoclLifInd BRICS Variable Name N/A

UUID: 506572c0-7eed-5675-aa34-5fcfeb77c370

yddJUbDcGkW NLM CDEs 12-02-2025-download