Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Diagnosis first given date and time NINDS Disease characterization
Including Alzheimer's Disease (AD)/AD-Related Dementias (ADRD) diagnosis and multiple chronic conditions (MCCs)
 NIH CDEs
  • ▼ NINDS
    • ▼ Disease
      • ▼ Amyotrophic Lateral Sclerosis
        • ▼ Classification
          • Core
        • ▼ Domain
          • ▼ Disease/Injury Related Events
            • Classification
      • ▼ Chiari I Malformation
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Disease/Injury Related Events
            • History of Disease/Injury Event
      • ▼ Duchenne/Becker Muscular Dystrophy
        • ▼ Classification
          • Supplemental-Highly Recommended
        • ▼ Domain
          • ▼ Disease/Injury Related Events
            • History of Disease/Injury Event
          • ▼ Participant History and Family History
            • General Health History
      • ▼ Epilepsy
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Outcomes and End Points
            • Assessing Comorbidities
      • ▼ Facioscapulohumeral muscular dystrophy (FSHD)
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Participant History and Family History
            • General Health History
      • ▼ Multiple Sclerosis
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Disease/Injury Related Events
            • Classification
      • ▼ Myasthenia Gravis
        • ▼ Classification
          • Core
        • ▼ Domain
          • ▼ Disease/Injury Related Events
            • History of Disease/Injury Event
      • ▼ Parkinson's Disease
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Disease/Injury Related Events
            • History of Disease/Injury Event
      • ▼ Spinal Muscular Atrophy
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Assessments and Examinations
            • Laboratory Tests and Biospecimens/Biomarkers
      • ▼ Traumatic Brain Injury
        • ▼ Comprehensive
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Assessments and Examinations
              • Physical/Neurological Examination
    • ▼ Domain
      • ▼ Assessments and Examinations
        • Laboratory Tests and Biospecimens/Biomarkers
        • Physical/Neurological Examination
      • ▼ Disease/Injury Related Events
        • Classification
        • History of Disease/Injury Event
      • ▼ Outcomes and End Points
        • Assessing Comorbidities
      • ▼ Participant History and Family History
        • General Health History
    • ▼ Population
      • Adult
      • Pediatric

# Datatype

UUID: 035869a7-80fa-5a27-85d4-de697dc96104

Date

# Definition

UUID: 2b4f419b-a8b4-5d67-abbc-1a42b1a994e0

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

# Designation

UUID: 5f081034-f345-5492-a29c-3efe1540486a

Diagnosis first given date and time

# Identifier Origin Version

UUID: 6497547c-ca95-5f26-887b-0d647c275b72

DiagnosFirstGivnDateTime BRICS Variable Name N/A

UUID: 566867be-2d6e-5c49-aee0-6a9f0afbc4a0

C08007 NINDS 3

UUID: f4adc798-61b3-5c81-97d9-d6bc0c9aaca4

McMjvoxqjU2 NLM CDEs 12-02-2025-download