Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In the past 7 days, how often did you wish very much for your suffering to end? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Emotional Status
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: d3d6febe-9530-5bd2-b5c3-b3f27fcb2394

Value List

# Permissible value Value meaning name

UUID: 991b3763-6312-5a65-82e0-fcfecfb80b94

Always Always

UUID: 59fee3f0-0bab-532d-ba05-9c316c805cc5

Never Never

UUID: a05b6005-2e9e-5bcb-b106-a95b968991dd

Often Often

UUID: 9e77834e-e872-5576-8ed8-d84cd3a0b3dd

Rarely Rarely

UUID: 014f7a63-656c-57c1-994d-b625b7508542

Sometimes Sometimes

# Definition Tags

UUID: b892f2e7-6efb-50f7-9f0a-e705095a74b7

Scale for the frequency over the past 7 days that the subject/participant strongly wished for his or her suffering to end, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: a42a4b4c-2f1f-5ae2-8194-04fda0939a04

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Wish strong suffer end past 7 day frequency scale Preferred Question Text

UUID: 924211b3-c51d-5440-a0e1-2961ae9d2ff9

In the past 7 days, how often did you wish very much for your suffering to end?

# Identifier Origin Version

UUID: 78650d49-a1fc-596d-94fe-888081e1fd40

C58680 NHLBI ID N/A

UUID: e38408f4-be12-51ac-947e-6ecbf6f0f4c4

ASCQMeWshStgSfrEndPs7DyFqScl BRICS Variable Name N/A

UUID: cbfb3b6e-c755-59fb-aa7c-e9702b5e9d01

0jmdee4Rmx NLM CDEs 12-02-2025-download