Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Race USA paternal category NINDS Demographic information
Patient and caregiver demographic information
NIH CDEs
  • NINDS
    • Disease
      • Chiari I Malformation
        • Classification
          • Supplemental
        • Domain
          • Participant Characteristics
            • Demographics
      • Congenital Muscular Dystrophy
        • Classification
          • Supplemental
        • Domain
          • Participant Characteristics
            • Demographics
      • Duchenne/Becker Muscular Dystrophy
        • Classification
          • Supplemental
        • Domain
          • Participant Characteristics
            • Demographics
      • Facioscapulohumeral muscular dystrophy (FSHD)
        • Classification
          • Supplemental
        • Domain
          • Participant Characteristics
            • Demographics
      • General (For all diseases)
        • Classification
          • Supplemental
        • Domain
          • Participant Characteristics
            • Demographics
      • Headache
        • Classification
          • Supplemental
        • Domain
          • Participant Characteristics
            • Demographics
      • Myasthenia Gravis
        • Classification
          • Core
        • Domain
          • Participant Characteristics
            • Demographics
      • Myotonic Dystrophy
        • Classification
          • Supplemental
        • Domain
          • Participant Characteristics
            • Demographics
      • Spinal Muscular Atrophy
        • Classification
          • Supplemental
        • Domain
          • Participant Characteristics
            • Demographics
      • Stroke
        • Classification
          • Supplemental
        • Domain
          • Participant Characteristics
            • Demographics
      • Traumatic Brain Injury
        • Acute Hospitalized
          • Classification
            • Supplemental
          • Domain
            • Participant Characteristics
              • Demographics
        • Epidemiology
          • Classification
            • Supplemental
          • Domain
            • Participant Characteristics
              • Demographics
        • Moderate/Severe TBI: Rehabilitation
          • Classification
            • Supplemental
          • Domain
            • Participant Characteristics
              • Demographics
    • Domain
      • Participant Characteristics
        • Demographics
    • Population
      • Adult
      • Pediatric

# Datatype
Value List

# Permissible value Value meaning name Value meaning definition
American Indian or Alaska Native American Indian or Alaska Native A person having origins in any of the original peoples of North and South America (including Central America) , and who maintains tribal affiliation or community attachment.
Asian Asian A person having origins in any of the original peoples of the Far East, Southeast Asia, or the Indian subcontinent including, for example, Cambodia, China, India, Japan, Korea, Malaysia, Pakistan, the Philippine Islands, Thailand, and Vietnam.
Black or African-American Black or African-American A person having origins in any of the black racial groups of Africa. Terms such as "Haitian" can be used in addition to "Black or African American."
Native Hawaiian or Other Pacific Islander Native Hawaiian or Other Pacific Islander A person having origins in any of the original peoples of Hawaii, Guam, Samoa, or other Pacific Islands.
Not Reported Not Reported Not provided or unavailable
Unknown Unknown Could not be determined or unsure
White White A person having origins in any of the original peoples of Europe, the Middle East, or North Africa.

# Definition
Race(s) the participant/subject's father most closely identifies with

# Designation
Race USA paternal category

# Identifier Origin Version
GfTPUmJv8Vc NLM CDEs 12-02-2025-download
3182269;2192199, 3182197 NINDS caDSR N/A
C00032 NINDS 3
RaceUSAPatrnlCat BRICS Variable Name N/A