Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Has a doctor or nurse ever told you that you have damage to your hip or shoulder due to sickle cell disease? NHLBI Disease characterization
Including Alzheimer's Disease (AD)/AD-Related Dementias (ADRD) diagnosis and multiple chronic conditions (MCCs)
NIH CDEs
  • NHLBI
    • Sickle Cell Disease
      • Domain
        • Disease Related Events
          • History of Disease Event
        • Outcomes and End Points
          • Quality of Life/Patient Reported Outcomes
      • Classification
        • Proposed

# Datatype
Value List

# Permissible value Value meaning name
No No
Yes Yes

# Definition Tags
Code indicating whether the subject/participant has ever been told by a medical professional that he or she has hip or shoulder damage due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Hip shoulder damage due sickle cell medical professional ever tell indicate code Preferred Question Text
Has a doctor or nurse ever told you that you have damage to your hip or shoulder due to sickle cell disease?

# Identifier Origin Version
TlYp1dpIOX NLM CDEs 12-02-2025-download
C58658 NHLBI ID N/A
ASCQMeHpShlDgDuSCMdPrEvTlInCd BRICS Variable Name N/A