Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Do you get regular blood transfusions for your sickle cell disease? NHLBI Treatment
Treatment for all conditions
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Disease Related Events
          • History of Disease Event
        • ▼ Outcomes and End Points
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: 279226e4-a18f-5951-8855-b1b55c9bc9b9

Value List

# Permissible value Value meaning name

UUID: e5a4cad7-903f-52cd-ac4b-55d2689de056

No No

UUID: 7c409437-223b-52d7-bea9-f87e30e3525c

Yes Yes

# Definition Tags

UUID: 2380b64b-d5f0-56d7-aa08-f737c18c93e0

Code indicating whether the subject/participant's receives regular blood transfusions due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: 36fe8ab5-8c55-50c5-ab40-8496ed2e63c0

Do you get regular blood transfusions for your sickle cell disease?

UUID: a0c2205a-2880-5554-b455-6469a1ef700b

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Blood transfusion regular due sickle cell indicate code Preferred Question Text

# Identifier Origin Version

UUID: 97cd687f-0377-5bcc-acac-4a61e8c67366

d066kCBxJy NLM CDEs 12-02-2025-download

UUID: 484ce8bb-f767-585b-b97f-2a25f803a958

ASCQMeBldTrnfsRegDuSCIndCode BRICS Variable Name N/A

UUID: 253f3802-746e-575e-9015-4f32852ba192

C58661 NHLBI ID N/A