Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Disabilities ScHARe Demographic information
Patient and caregiver demographic information
NIH CDEs
  • ScHARe
    • Core

# Datatype
Value List

# Permissible value Value meaning name Value meaning definition Concept Concept source
Blindness or difficulty seeing Blindness or difficulty seeing The lack of vision. It is caused by neurological or physiological factors. C97109 NCI Thesaurus
Deafness or difficulty hearing Deafness or difficulty hearing An inherited or acquired condition characterized by the inability to hear in one or both ears. C27644 NCI Thesaurus
Difficulty concentrating, remembering, and deciding Difficulty concentrating, remembering, and deciding A question about whether an individual has or had difficulty concentrating. C125405 NCI Thesaurus
Difficulty doing errands alone Difficulty doing errands alone A response indicating that an individual needs help from another person for errands and chores. C130979 NCI Thesaurus
Difficulty dressing or bathing Difficulty dressing or bathing A response indicating that an individual has or had severe problems with washing or dressing. C120235 NCI Thesaurus
Difficulty walking or climbing stairs Difficulty walking or climbing stairs A response indicating that an individual has or had severe problems walking. C120229 : A question about whether an individual has or had difficulty climbing stairs or getting up out of a chair because of weakness in their legs. C125734 C120229 : C125734 NCI Thesaurus
Not disabled Not disabled A response indicating that an individual is not disabled. C142468 NCI Thesaurus

# Name Origin Origin Concept type
Disabled Population NCI Thesaurus C16661 data element concept

# Definition Sources
Groups with similar restrictions or lack or ability to perform physical or mental activities in a manner or within the range considered normal for a human being. NIMHD ScHARe

# Designation Tags
Do you have a disability or have serious difficulty with any of the following? Select all that apply. Preferred Question Text
Disabilities

# Identifier Origin Version
0md12WGtZXE NLM CDEs 12-02-2025-download