Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In the past 7 days, how often did you think your life would be better if you were healthy? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Emotional Status
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: d3d6febe-9530-5bd2-b5c3-b3f27fcb2394

Value List

# Permissible value Value meaning name

UUID: 991b3763-6312-5a65-82e0-fcfecfb80b94

Always Always

UUID: 59fee3f0-0bab-532d-ba05-9c316c805cc5

Never Never

UUID: a05b6005-2e9e-5bcb-b106-a95b968991dd

Often Often

UUID: 9e77834e-e872-5576-8ed8-d84cd3a0b3dd

Rarely Rarely

UUID: 014f7a63-656c-57c1-994d-b625b7508542

Sometimes Sometimes

# Definition Tags

UUID: a5458f82-f360-5f37-b68a-a95314f611ca

Scale for the frequency over the past 7 days that the subject/participant thought his or her life would be better if he or she were healthy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: e2c00a21-2673-540c-aa69-ede7875582a4

In the past 7 days, how often did you think your life would be better if you were healthy?

UUID: 762b2553-7b6d-5db8-9a57-4f99c573713d

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think life better if healthy past 7 day frequency scale Preferred Question Text

# Identifier Origin Version

UUID: 64c4cf87-a72b-5a99-a02e-df44981e082d

C58674 NHLBI ID N/A

UUID: ca754961-e8b4-5643-8479-424023aec8e7

ASCQMeThLfBtrIfHthPs7DyFqScl BRICS Variable Name N/A

UUID: 4212a025-0cc2-507c-a47a-655e16845163

e0KmOA0m8e NLM CDEs 12-02-2025-download