Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In the past 7 days, how lonely did you feel because of your health problems? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Emotional Status
          • Patient Reported Outcomes
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: 17ce708b-3a81-5945-94d0-4fd489625bcd

Value List

# Permissible value Value meaning name

UUID: 14f19f6b-263a-51a4-80aa-dc571bca56fa

A little A little

UUID: 1466d196-0720-585e-8aae-79e0cb3a80a4

Not at all Not at all

UUID: 635e39d6-632f-5134-97c8-eda9cffad944

Quite Quite

UUID: 2ccbac02-b6ea-5dba-86fb-f455b3b82371

Somewhat Somewhat

UUID: b33f5a12-8858-5ad9-8252-b8505a628d94

Very Very

# Definition Tags

UUID: 1a964625-bce5-50de-9e5d-0a718932b960

Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: b4aecc9c-a2a3-587e-9e70-f8c57e20e7f3

In the past 7 days, how lonely did you feel because of your health problems?

UUID: 15b4c175-1556-5608-a2bc-704e82d126bb

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Loneliness because health past 7 day scale Preferred Question Text

# Identifier Origin Version

UUID: 0d8bb125-9a4a-5aed-9c15-641cec871578

ozt_wgcyuQ NLM CDEs 12-02-2025-download

UUID: 729b3541-c012-5553-afd7-70dad1a44865

C58645 NHLBI ID N/A

UUID: 3877caef-0378-5e04-b3e4-a271d1f25dec

ASCQMeLonlinsBcHlthPs7DyScl BRICS Variable Name N/A