Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Age of Symptom Onset GRDR Disease characterization
Including Alzheimer's Disease (AD)/AD-Related Dementias (ADRD) diagnosis and multiple chronic conditions (MCCs)
 NIH CDEs
  • ▼ GRDR
    • ▼ Requirement
      • Required
    • ▼ Category
      • Diagnosis

# Definition Datatype

UUID: 86463c33-b79e-5104-b8aa-fe2e0bb08539

Prenatal At birth Less than 1 year Age 1 - 89 years 90+ years Participant never experienced any symptoms Age of onset unknown Value List

# Permissible value Value meaning name

UUID: 23ee3f29-c6fe-5eff-80a1-394be471d817

90+ years 90+ years

UUID: ea9e4494-7f71-5d0a-9bfd-4fd09ce13561

Age 1 - 89 years Age 1 - 89 years

UUID: 7014fa4b-7798-5a47-80eb-5461afa60e38

Age of onset Age of onset

UUID: 83908e75-0114-525a-8d33-410a94f6cff2

At birth At birth

UUID: b668c393-7189-57f6-b0ab-cbcf23fb868b

Less than 1 year Less than 1 year

UUID: 88b422c8-7dde-58d6-8a5d-2289b023eb5e

Participant never experienced any symptoms Participant never experienced any symptoms

UUID: 8b6ff97f-fb57-5a41-8175-e40e52a17434

Prenata Prenata

UUID: 27dbf1a0-212d-5b62-b059-c5f30f3fc432

Unknown Unknown

# Definition Tags

UUID: cd3cd494-3893-5a11-b9ba-80be23d4bb49

Prenatal At birth Less than 1 year Age 1 - 89 years 90+ years Participant never experienced any symptoms Age of onset unknown Health

# Designation Tags

UUID: d69601d4-b8f0-5301-a293-c6810d2b2077

What was the participant's age in years when they first began experiencing symptoms of the rare disease? Health

UUID: cee2955b-38ee-52b6-a64f-103b1f4054f6

Age of Symptom Onset Question

# Identifier Origin Version

UUID: 220e0273-6f63-5400-b4eb-d7f1bd5f6045

GRDR028 GRDR N/A

UUID: 395e85ec-874a-5f18-9df8-076539e7f301

9Wx7BE0J6V6 NLM CDEs 12-02-2025-download