Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In the past 12 months, how many sickle cell pain attacks (crises) days did you have? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Pain
          • Patient Reported Outcomes
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: 6131667d-338b-5e20-b118-e6b7fbd5a878

Value List

# Permissible value Value meaning name

UUID: 062baafd-69d1-5899-886b-1a392829b27a

1 1

UUID: a2207a0d-dcaa-54db-ae87-d5592293c457

2 2

UUID: 4cd4cc28-a997-5c1d-af10-ce77406f277f

3 3

UUID: 4e6e156e-d0c2-512f-a4e1-3ac2c86c4ed9

4 or more 4 or more

UUID: e46c6fc3-212b-578d-b480-ee54dc75c361

I did not have a pain attack (crises) in the past 12 months I did not have a pain attack (crises) in the past 12 months

# Definition Tags

UUID: 640e3f89-5c99-578a-a9c7-fefa9f5bdc91

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: 8e58ea5e-9add-586a-a67c-6619b9937105

In the past 12 months, how many sickle cell pain attacks (crises) days did you have?

UUID: 3daf5971-b8f3-5c2e-bf67-b41336c572f2

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code Preferred Question Text

UUID: 402c35ca-60ed-53b7-a132-c536a4d94ca1

In the past 12 months, how many sickle cell pain attacks (crises) did you have?

# Identifier Origin Version

UUID: e5dfe3d1-0135-51da-be83-009449d1628c

iy35Ipu83G NLM CDEs 12-02-2025-download

UUID: 22ad39e9-bd36-58bc-a486-b3cd2317a00e

ASCQMePnEpsdCrsPs12MoDyCtCode BRICS Variable Name N/A

UUID: 1afb9c27-602d-53c6-9115-651b99d7bcdb

C58663 NHLBI ID N/A