Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
How are you related to the child? NHLBI Demographic information
Patient and caregiver demographic information
NIH CDEs
  • NHLBI
    • Sickle Cell Disease
      • Domain
        • Assessments and Examinations
          • Hospital/Care Management
      • Classification
        • Proposed

# Datatype
Value List

# Permissible value Value meaning name
Aunt or uncle Aunt or uncle
Grandparent Grandparent
Legal guardian Legal guardian
Mother or father Mother or father
Older sibling Older sibling
Other relative Other relative

# Definition Tags
Code for the relationship to the patient of the individual answering the questionnaire. Short Description Description

# Designation Tags
Respondent relation patient code Preferred Question Text
How are you related to the child?

# Identifier Origin Version
L2ZiOu6tUv NLM CDEs 12-02-2025-download
C59349 NHLBI ID N/A
RespondRelatePtCode BRICS Variable Name N/A