Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Thinking about your child's life, My child has a reason for living. PROMIS / Neuro-QOL Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ PROMIS / Neuro-QOL
    • ▼ PROMIS Instruments
      • ▼ Population
        • Adult

# Datatype

UUID: b9e9d2e4-b991-52cc-b644-977936772192

Value List

# Permissible value Value meaning name

UUID: 384bb038-7070-5bd1-ab58-a4be47738417

1 Not at all

UUID: b4c2c736-d095-522a-840d-f2ac4b17a281

2 A little bit

UUID: 8cf8dca9-52b1-5c67-9b7d-f41c45809e44

3 Somewhat

UUID: 2d4dc5fc-53e8-5e7f-a2a8-a015fdd9ee07

4 Quite a bit

UUID: d2bf3797-14b3-5056-b3b8-7350f0fd7150

5 Very much

# Designation

UUID: d0fde023-abd1-5cf6-8f99-4e1f0bbec528

Thinking about your child's life, My child has a reason for living.

# Identifier Origin Version

UUID: 95e2246f-b19e-558e-a05d-3449b13d8bff

SWB_FO_052_PXR1 Assessment Center N/A

UUID: cbe9cdac-4d30-59dd-ae28-88127b6e48c3

mkr9O9p0mm NLM CDEs 12-02-2025-download