Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Has your spleen either been removed or seriously damaged due to sickle cell disease? NHLBI Disease characterization
Including Alzheimer's Disease (AD)/AD-Related Dementias (ADRD) diagnosis and multiple chronic conditions (MCCs)
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Disease Related Events
          • History of Disease Event
        • ▼ Outcomes and End Points
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: 279226e4-a18f-5951-8855-b1b55c9bc9b9

Value List

# Permissible value Value meaning name

UUID: e5a4cad7-903f-52cd-ac4b-55d2689de056

No No

UUID: 7c409437-223b-52d7-bea9-f87e30e3525c

Yes Yes

# Definition Tags

UUID: 5e502a5c-cd3e-52bd-8ed8-1666a1da716c

Code indicating whether the subject/participant's spleen has been removed or severely damaged due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: ff5be970-821a-5b27-be84-1a417b492959

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Spleen remove damage due sickle cell indicate code Preferred Question Text

UUID: 0c811b24-781a-5a5b-a8fe-71679ce412c5

Has your spleen either been removed or seriously damaged due to sickle cell disease?

# Identifier Origin Version

UUID: 94c01b4a-2e8b-5f77-b512-a7d8aadfee9b

ASCQMeSplnRemvDmgIndCode BRICS Variable Name N/A

UUID: 35d18e11-41d1-5caf-9327-c2974a23dede

C58660 NHLBI ID N/A

UUID: 6f11a60b-473f-57ed-93aa-5f7b791eace1

aZjbbnFSk NLM CDEs 12-02-2025-download