Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
6. Have you ever been diagnosed by a medical doctor or other health professional with an intersex condition or a "Difference of Sex Development (DSD)" or were you born with (or developed naturally in puberty) genitals, reproductive organs, and/or chromosomal patterns that do not fit standard definitions of male or female? NACC Demographic information
Patient and caregiver demographic information
Other NIA-funded studies
  • NACC
    • Uniform Data Set
      • Form name- A1: Participant Demographics
        • Packet- Initial Visit Packet
          • Variable name- intersex

# Datatype
Value List

# Permissible value Value meaning name
0 No
1 Yes
8 Prefer not to answer
9 Don't know

# Identifier Origin Version
UDS_a1_Initial Visit Packet_intersex NACC-source_dataset+form_name+packet+var_name NACC_uds-v4-ivp-ded-11122025