Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In the past 7 days, how much did you worry about getting sick? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Emotional Status
          • Patient Reported Outcomes
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: 51d32f83-cd87-5ffe-a015-46879d1b5c94

Value List

# Permissible value Value meaning name

UUID: 6d1d7782-819d-5cb3-863b-70fccba5b622

A little bit A little bit

UUID: 1466d196-0720-585e-8aae-79e0cb3a80a4

Not at all Not at all

UUID: 1b766036-bdba-5617-8435-1e915ad0c621

Quite a bit Quite a bit

UUID: 2ccbac02-b6ea-5dba-86fb-f455b3b82371

Somewhat Somewhat

UUID: 0259c81c-3377-5b17-9e46-39da72d3102b

Very much Very much

# Definition Tags

UUID: 15ddf7f3-df12-54dd-9db3-c4bae9b41f0c

Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: 2c9544bc-c31f-50cf-bea0-12701800ee60

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry about become sick past 7 day scale Preferred Question Text

UUID: 963b01e7-9a59-5eaf-b602-d52265ef6bf5

In the past 7 days, how much did you worry about getting sick?

# Identifier Origin Version

UUID: b9c3ace0-b0aa-5a70-939b-2eab1ef086b5

C58647 NHLBI ID N/A

UUID: 629f6267-e8e0-5294-b9e5-be83fdb4a934

ndo_Zxp1S NLM CDEs 12-02-2025-download

UUID: 141d0715-1701-50fd-81e9-c909d5e9e23f

ASCQMeWryAbtBcmSickPs7DyScl BRICS Variable Name N/A