| Name | Steward Organization | Suggested Domain | Suggested Domain Description | Cde Group | Classification |
|---|---|---|---|---|---|
| Medical Foods/Special Diet | GRDR | Treatment |
Treatment for all conditions |
NIH CDEs |
|
| # | Definition | Datatype |
|---|---|---|
|
|
Each registry defines a set of responses that are presented in the survey. None | Externally Defined |
| # | Definition | Tags |
|---|---|---|
|
|
Registries may wish to add "Other" with free text to capture additional data. Responses to these free text items will not be uploaded to the GRDR repository. | Question |
|
|
Each registry defines a set of responses that are presented in the survey. None | Health |
| # | Designation | Tags |
|---|---|---|
|
|
Does the participant take any medical foods or follow a special diet for treatment of his/her rare disease? | Health |
|
|
Medical Foods/Special Diet | Question |
| # | Identifier | Origin | Version |
|---|---|---|---|
|
|
Y_96qHD8Oop | NLM CDEs | 12-02-2025-download |
|
|
GRDR039 | GRDR | N/A |