Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
As compared with other people with sickle cell disease, how sure are you that you can manage your life from day-to-day? NHLBI Health assessment
e.g., Activities of Daily Living (ADL), Instrumental ADL, cognitive function, etc.
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Functional Outcomes
          • Subjective Assessments/Patient and Caregiver Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: b83236a9-9d1e-5ec4-9cfb-f1ccb79fc3a4

Value List

# Permissible value Value meaning name

UUID: 0b41fa90-1705-5f73-a870-844bbabde0d7

Neither Neither

UUID: c182b337-9dcd-5c3d-b878-cf3ac77f18c9

Not sure Not sure

UUID: 1d4c3922-3924-59f2-bf7f-b4c9bf10f360

Not sure at all Not sure at all

UUID: f5f1c822-f39b-5b7b-81e3-f11f58e034be

Sure Sure

UUID: 3fc545b7-04f4-5961-b8c1-627933503dbe

Very sure Very sure

# Definition Tags

UUID: 4e1fd064-fb3b-5392-8458-efad3d9d8df6

Scale of the subject/participant's conviction that he or she can manage his or her daily life, as compared to other people with sickle cell disease Short Description Description

# Designation Tags

UUID: e42372a3-cf37-5f4c-8b3d-88838ad97754

Comparative management of daily life sure scale Preferred Question Text

UUID: 4b652c51-f2de-53f7-b394-4a25fa914b69

As compared with other people with sickle cell disease, how sure are you that you can manage your life from day-to-day?

# Identifier Origin Version

UUID: 9c3f742f-8359-5b90-b614-3cacd6175394

CompMgmtOfDlyLifSurScl BRICS Variable Name N/A

UUID: de8097ab-5f39-54c6-a147-f687bf79842e

C59384 NHLBI ID N/A

UUID: 383de14f-2883-5d05-8070-ffc071d66fcd

EMvHfbek2d NLM CDEs 12-02-2025-download