Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem frustrating indicator NINDS Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NINDS
    • ▼ Disease
      • ▼ Amyotrophic Lateral Sclerosis
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Outcomes and End Points
            • Quality of Life/Patient Reported Outcomes
      • ▼ Parkinson's Disease
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ Outcomes and End Points
            • Other Non-Motor
    • ▼ Domain
      • ▼ Outcomes and End Points
        • Other Non-Motor
        • Quality of Life/Patient Reported Outcomes
    • ▼ Population
      • Adult

# Datatype

UUID: 66cfba1c-3407-504c-8611-a6ce3f12d4fb

Value List

# Permissible value Value meaning name Value meaning definition

UUID: 4c8c4249-4ef4-5888-ada4-78ba223b03dd

1 Always true Always true

UUID: 6bbf587d-e08d-5cdc-997e-c49f90640632

2 Often true Often true

UUID: ff4aba1f-373d-5023-9238-8fc6ddc70f73

3 Sometimes true Sometimes true

UUID: 9b53fa08-e8b0-52ed-beff-aa2d7b31a2ca

4 Hardly ever true Hardly ever true

UUID: 54fa2575-c178-5192-bb9b-41ab37d2c938

5 Never true Never true

# Definition

UUID: a25628e9-7dd7-546a-a029-773340800835

Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem frustrates me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).

# Designation

UUID: 8a36abfd-bcfd-5d96-8623-d24596ef49c4

Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem frustrating indicator

# Identifier Origin Version

UUID: faa71d06-cf0b-5d69-958a-bcb3071c16e2

C10307 NINDS 3

UUID: 22c0d1f2-6b5e-506a-94d9-3be726095b72

SWALQOLSwllwngProbFrstrngInd BRICS Variable Name N/A

UUID: dcf626b4-21ba-5fa7-84c8-232ddda86835

3JKegpAyoUy NLM CDEs 12-02-2025-download