Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In the last 6 months, how many times did you visit an emergency room because of a sickle cell painful event? Indicate the number of times NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Pain
      • ▼ Classification
        • Proposed

# Datatype Datatype number min value Datatype number max value

UUID: 72cfa825-5985-5c98-ac0a-44c5b19c677a

Number 0.0 100.0

# Definition Tags

UUID: 489ff27e-5f5f-57f6-8388-9c30af21761e

Frequency subject/participant visited the emergency room due to Sickle Cell pain in the last 6 months. Description

UUID: cf2ea21e-a5d6-58c3-bbc5-707f3e586979

Frequency of times subject/participant visited the emergency room due to Sickle Cell pain in the last 6 months. Short Description

# Designation Tags

UUID: b816dabf-d833-5e87-8993-be148c4d6ae7

Emergency room visit due to sickle cell pain past 6 months frequency Preferred Question Text

UUID: 989c63fe-5dfe-5d2e-9c0c-7c42f0bb5a64

In the last 6 months, how many times did you visit an emergency room because of a sickle cell painful event? Indicate the number of times

# Identifier Origin Version

UUID: 2c013499-b292-5e97-aae3-83cf1e490d39

vWbCG7Nrj NLM CDEs 12-02-2025-download

UUID: e7162d22-7149-5158-b691-9913122d4024

C59439 NHLBI ID N/A

UUID: 3051c34e-3140-5ee5-a3a9-4c5a878df68e

EmRmVstDu2SCPnPst6MoFreq BRICS Variable Name N/A