Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In the past 30 days, how worried was your family about your health? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Quality of Life/Patient Reported Outcomes
          • Social Role Participation and Social Competence
      • ▼ Classification
        • Proposed

# Datatype

UUID: 17ce708b-3a81-5945-94d0-4fd489625bcd

Value List

# Permissible value Value meaning name

UUID: 14f19f6b-263a-51a4-80aa-dc571bca56fa

A little A little

UUID: 1466d196-0720-585e-8aae-79e0cb3a80a4

Not at all Not at all

UUID: 635e39d6-632f-5134-97c8-eda9cffad944

Quite Quite

UUID: 2ccbac02-b6ea-5dba-86fb-f455b3b82371

Somewhat Somewhat

UUID: b33f5a12-8858-5ad9-8252-b8505a628d94

Very Very

# Definition Tags

UUID: 8b718b0f-26ac-5f63-8973-ca862bb36ecf

Scale for the extent in the past 30 days that the subject/participant's family worried about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: 48cddda5-7bc7-59ae-b21f-119c56c14171

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Family worry health past 30 day scale Preferred Question Text

UUID: c5bdcfab-197c-5f21-af3c-74db85b9af18

In the past 30 days, how worried was your family about your health?

# Identifier Origin Version

UUID: b73f8612-4403-5015-885e-cbcd133b0524

kjEqfSuYw4 NLM CDEs 12-02-2025-download

UUID: 72e34513-92bb-5abd-aeff-68886050c532

C58625 NHLBI ID N/A

UUID: c59ed368-5208-5107-afd3-280f5b26337f

ASCQMeFmlyWryHlthPst30DayScl BRICS Variable Name N/A