Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In the past 7 days, how often did you think your health problems were ruining your life? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Emotional Status
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: d3d6febe-9530-5bd2-b5c3-b3f27fcb2394

Value List

# Permissible value Value meaning name

UUID: 991b3763-6312-5a65-82e0-fcfecfb80b94

Always Always

UUID: 59fee3f0-0bab-532d-ba05-9c316c805cc5

Never Never

UUID: a05b6005-2e9e-5bcb-b106-a95b968991dd

Often Often

UUID: 9e77834e-e872-5576-8ed8-d84cd3a0b3dd

Rarely Rarely

UUID: 014f7a63-656c-57c1-994d-b625b7508542

Sometimes Sometimes

# Definition Tags

UUID: 16f80b08-985f-53b2-b279-3988b35cd0de

Scale for the frequency over the past 7 days that the subject/participant thought his or her health problems were ruining his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: 3076ac58-f605-546b-9e37-14e4fb29b938

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think health problem ruin life past 7 day frequency scale Preferred Question Text

UUID: ad910b39-9c00-5de5-abb4-6ed0822fcc06

In the past 7 days, how often did you think your health problems were ruining your life?

# Identifier Origin Version

UUID: 34d28c0c-4eb7-556f-a356-851e8f1709f9

xfLzh66cv NLM CDEs 12-02-2025-download

UUID: af9b18dd-a523-54cf-a7d6-30b258eaf094

C58679 NHLBI ID N/A

UUID: 7a06f7d3-356e-5745-ab35-dfb1bb01fcd3

ASCQMeThkHthPrbRnLfPs7DyFqScl BRICS Variable Name N/A