Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
About how long did your most recent pain attack (crisis) last? NHLBI Health assessment
e.g., Activities of Daily Living (ADL), Instrumental ADL, cognitive function, etc.
NIH CDEs
  • NHLBI
    • Sickle Cell Disease
      • Domain
        • Outcomes and End Points
          • Pain
          • Patient Reported Outcomes
          • Quality of Life/Patient Reported Outcomes
      • Classification
        • Proposed

# Datatype
Value List

# Permissible value Value meaning name
1-12 hours 1-12 hours
1-2 weeks 1-2 weeks
1-3 days 1-3 days
13-23 hours 13-23 hours
4-6 days 4-6 days
I've never had a pain attack (crises) I've never had a pain attack (crises)
Less than 1 hour Less than 1 hour
More than 2 weeks More than 2 weeks

# Definition Tags
Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent duration code Preferred Question Text
About how long did your most recent pain attack (crisis) last?

# Identifier Origin Version
_Xiqwu3uOY NLM CDEs 12-02-2025-download
ASCQMePnEpsdCrsMsRctDurCode BRICS Variable Name N/A
C58667 NHLBI ID N/A