Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Clinical event or milestone achieved indicator NINDS Disease characterization
Including Alzheimer's Disease (AD)/AD-Related Dementias (ADRD) diagnosis and multiple chronic conditions (MCCs)
 NIH CDEs
  • ▼ NINDS
    • ▼ Disease
      • ▼ Amyotrophic Lateral Sclerosis
        • ▼ Classification
          • Exploratory
        • ▼ Domain
          • ▼ Outcomes and End Points
            • Functional Outcomes
      • ▼ Cerebral Palsy
        • ▼ Classification
          • Core
        • ▼ Domain
          • ▼ Participant History and Family History
            • General Health History
      • ▼ Spinal Muscular Atrophy
        • ▼ Classification
          • Core
        • ▼ Domain
          • ▼ Disease/Injury Related Events
            • History of Disease/Injury Event
    • ▼ Domain
      • ▼ Disease/Injury Related Events
        • History of Disease/Injury Event
      • ▼ Outcomes and End Points
        • Functional Outcomes
      • ▼ Participant History and Family History
        • General Health History
    • ▼ Population
      • Adult
      • Pediatric

# Datatype

UUID: f87bede7-4c9e-5879-b129-531a2af00941

Value List

# Permissible value Value meaning name Value meaning definition

UUID: d3942660-f5bb-5c9c-99b8-dc1008de8fee

No No No

UUID: 2f6d1627-acd4-50bc-b9b4-d6e227a17176

Unknown Unknown Unknown

UUID: 98154952-fef8-58b1-acb9-4bbf599f1863

Yes Yes Yes

# Definition

UUID: d691695a-d2bc-5c62-a13e-e19043e23549

Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder

# Designation

UUID: ab4e3b4e-318a-5412-9891-bfb0448b9c5a

Clinical event or milestone achieved indicator

# Identifier Origin Version

UUID: 676b67fb-7d8d-5334-b2d2-e58677555210

ClinEvntMilestoneAchvInd BRICS Variable Name N/A

UUID: 66df7a2d-0d5d-52ae-91af-e4d9a75a6c4a

C10616 NINDS 3

UUID: 867c9b8d-c331-5b14-be3a-8e5f91923115

ecMAjmWXN6O NLM CDEs 12-02-2025-download