Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Body part first affected text NINDS Disease characterization
Including Alzheimer's Disease (AD)/AD-Related Dementias (ADRD) diagnosis and multiple chronic conditions (MCCs)
NIH CDEs
  • NINDS
    • Disease
      • Amyotrophic Lateral Sclerosis
        • Classification
          • Core
        • Domain
          • Disease/Injury Related Events
            • Classification
    • Domain
      • Disease/Injury Related Events
        • Classification
    • Population
      • Adult

# Datatype
Value List

# Permissible value Value meaning name Value meaning definition
Bulbar Bulbar Bulbar
LLE LLE LLE (left lower extremity)
LUE LUE LUE (left upper extremity)
Other, specify Other, specify Other, specify
Respiratory Respiratory Respiratory
RLE RLE RLE (right lower extremity)
RUE RUE RUE (right upper extremity)
Trunk Trunk Trunk

# Definition
Identification of the body part(s) first affected by the disease.

# Designation
Body part first affected text

# Identifier Origin Version
fhdAjKOUZ2p NLM CDEs 12-02-2025-download
BodyPartFirstAffectedTxt BRICS Variable Name N/A
C11119 NINDS 3