Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
In the past 7 days, how much did your health bother you? NHLBI Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NHLBI
    • ▼ Sickle Cell Disease
      • ▼ Domain
        • ▼ Outcomes and End Points
          • Emotional Status
          • Quality of Life/Patient Reported Outcomes
      • ▼ Classification
        • Proposed

# Datatype

UUID: 51d32f83-cd87-5ffe-a015-46879d1b5c94

Value List

# Permissible value Value meaning name

UUID: 6d1d7782-819d-5cb3-863b-70fccba5b622

A little bit A little bit

UUID: 1466d196-0720-585e-8aae-79e0cb3a80a4

Not at all Not at all

UUID: 1b766036-bdba-5617-8435-1e915ad0c621

Quite a bit Quite a bit

UUID: 2ccbac02-b6ea-5dba-86fb-f455b3b82371

Somewhat Somewhat

UUID: 0259c81c-3377-5b17-9e46-39da72d3102b

Very much Very much

# Definition Tags

UUID: e237165e-d17f-5a4d-808e-aa1275995c1f

Scale for the degree to which the subject/participant was bothered over the past 7 days by his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Short Description Description

# Designation Tags

UUID: ceefbab7-703f-530e-82e2-e6bbe7350890

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Health bother past 7 day scale Preferred Question Text

UUID: 873fd7f2-1417-5cc8-986e-ed5c9e9c5d7b

In the past 7 days, how much did your health bother you?

# Identifier Origin Version

UUID: 0128e8a2-631c-5bcd-95a0-a5b02a766543

C58687 NHLBI ID N/A

UUID: b3f1adca-c9e4-5db3-902a-d3584a022011

mA1sE_rYJB NLM CDEs 12-02-2025-download

UUID: ecfcccff-3422-5c76-b6aa-b451ce015e00

ASCQMeHlthBothrPs7DyScl BRICS Variable Name N/A