Name Steward Organization Suggested Domain Suggested Domain Description Cde Group Classification
Quality of Life - Outside home entertainment limit ability past week scale NINDS Health outcomes
Patient and caregiver health outcomes
 NIH CDEs
  • ▼ NINDS
    • ▼ Disease
      • ▼ General (For all diseases)
        • ▼ Classification
          • Supplemental
        • ▼ Domain
          • ▼ NIH Resources
            • NIH Resources
      • ▼ Sport Related Concussion
        • ▼ Acute
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
        • ▼ Comprehensive
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
        • ▼ Persistent/Chronic
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
        • ▼ Subacute
          • ▼ Classification
            • Supplemental
          • ▼ Domain
            • ▼ Outcomes and End Points
              • Quality of Life/Patient Reported Outcomes
    • ▼ Domain
      • ▼ NIH Resources
        • NIH Resources
      • ▼ Outcomes and End Points
        • Quality of Life/Patient Reported Outcomes
    • ▼ Population
      • Adult
      • Pediatric

# Datatype

UUID: f1ce0f11-74f0-536c-b790-3e26402f804c

Value List

# Permissible value Value meaning name Value meaning definition

UUID: 6f501fb2-fde0-5892-93a0-20869121af3b

1 Always Always

UUID: b51128dc-4a2b-5783-a1c5-86e24815b3ad

2 Often Often

UUID: 09edc822-2478-5a76-8ac1-6549d8ad53d7

3 Sometimes Sometimes

UUID: a71defea-2820-5aae-9b9c-c44441a671a8

4 Rarely Rarely

UUID: 372e5323-d014-5675-9c93-2b90cb51e556

5 Never Never

# Definition

UUID: b0195ecf-9d58-5923-91eb-a511ae9a0225

The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.

# Designation

UUID: 4c6a5545-a591-5d99-ad17-39512389caac

Quality of Life - Outside home entertainment limit ability past week scale

# Identifier Origin Version

UUID: 23efa8d9-abd2-5034-9aac-51dc1de69d67

C21177 NINDS 1

UUID: 8f5805f9-6f92-5bcd-b7c6-9b0de7162b2f

XkGHeJOWZ3_g NLM CDEs 12-02-2025-download

UUID: 3b47f586-707b-50b1-ac23-ec662a74c815

QoLOutsdeHmEntrtnmtLmtAbltyScl BRICS Variable Name N/A